A Glimpse Into My Journey

I answer the question, “how did you get here?” and it’s not the answer you’re expecting.

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“I’m uncomfortable
but growth and excellence is bred here.
I feel it. I’m stretching.”

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I live with Polycythemia Vera.

A rare blood cancer. But this is only one part of my story …

On Feb 28, 2019, National Rare Disease Day, I started an ongoing Twitter thread about my experiences along my health journey.

It's not the type of disease you can see but the type you live with every moment of every day. From lifestyle changes to scrambling to find adequate health insurance (#entrepreneurlife) … I decided to document it.